Regional Director, Rare Disease, Neurology… at Ultragenyx · Remote

Why Join Us?
Be a hero for our rare disease patients
At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.
Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.
If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.
Position Summary:
ultradedicated – Your biggest challenges yield rare possibilities
The Regional Director (RD), Neurology, will lead a team of UltraCare Liaisons (UCLs) responsible for the successful launch, commercialization, and growth of Ultragenyx's Neurology portfolio. This leader will establish a high-performing team culture that aligns with Ultragenyx values and is focused on patient impact, compliance, accountability, and execution excellence. The RD will drive regional business performance through strategic planning, coaching, customer engagement, and cross-functional collaboration while supporting access and adoption within the rare neurology community. The Regional Director will report directly to the National Field Leader, Neurology.
The territory for this role includes: Boston, Rochester, Hartford, Long Island, New Jersey, New York, and Philadelphia East.
Work Model:
Field: Officially documented as working as a member of the Ultragenyx field team, generally interacting with third parties on behalf of Ultragenyx.
Responsibilities:
Recruit, develop, coach, and retain a high-performing, diverse team of Neurology-focused commercial field professionals.
Lead regional business planning and execution to achieve launch, growth, and performance objectives aligned with national commercial strategy.
Drive launch readiness and post-launch execution, ensuring excellence in customer engagement, account planning, and team preparedness.
Coach field team members through regular field visits, performance reviews, and development planning to strengthen capabilities and execution.
Ensure team expertise in rare neurologic diseases, patient identification, treatment pathways, market access, reimbursement, and site-of-care dynamics.
Build and maintain strategic relationships with healthcare providers, Centers of Excellence, integrated health systems, advocacy organizations, and other key stakeholders.
Partner cross-functionally with Medical Affairs, Market Access, Patient Services, Marketing, Commercial Operations, and other stakeholders to optimize patient access and business outcomes.
Analyze market trends, competitive activity, customer insights, and business performance data to inform regional strategy and decision-making.
Manage regional resources, budgets, meetings, training initiatives, and commercial activities in compliance with company policies and industry regulations.
Foster a patient-first, compliant, and collaborative culture while leading organizational change, innovation, and continuous improvement.
Requirements:
Bachelor's degree required; advanced degree preferred.
7+ years of pharmaceutical, biotechnology, rare disease, or specialty field leadership experience with a track record of commercial success.
Rare disease experience required; rare neurology experience strongly preferred.
Experience launching and/or commercializing highly specialized therapies, including ASO, gene therapy, or other advanced treatments, preferred.
Demonstrated success building, coaching, and developing high-performing teams while promoting accountability, compliance, and talent growth.
Strong understanding of rare disease patient journeys, diagnosis pathways, treatment administration, reimbursement, market access, and site-of-care considerations.
Experience working with academic medical centers, Centers of Excellence, infusion networks, multidisciplinary care teams, and complex healthcare systems preferred.
Proven ability to develop and execute strategic account plans and translate data-driven insights into actionable business strategies.
Strong cross-functional leadership, collaboration, and influencing skills, with the ability to navigate ambiguity in a fast-paced environment.
High ethical standards, strong business acumen
Approximately 60–70% travel is required including overnight travel as needed
#LI-AM1 #LI-Remote
The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.

This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.
Pay Range
$225,900—$279,100 USD
Full Time employees across the globe enjoy a range of benefits, including, but not limited to:
·         Generous vacation time and public holidays observed by the company
·         Volunteer days
·         Long term incentive and Employee stock purchase plans or equivalent offerings
·         Employee wellbeing benefits
·         Fitness reimbursement
·         Tuition sponsoring
·         Professional development plans
* Benefits vary by region and country
Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at talentacquisition@ultragenyx.com.
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Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation.  Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.